Core Outcome Measures in Effectiveness Trials

ICHOM: A Standard Set of Core Outcome Measures for Children and Young People with Anxiety, Depression, and OCD

General Information

Summary:
The ICHOM Standard Set of outcomes for anxiety, depression and OCD in children and young people is a project that will involve an international working group of leading clinicians, measurement experts, and patients. The aim of the working group will be to produce a recommendation of the outcomes that matter most to patients with these conditions. This will enable providers to start measuring outcomes in a standardised way and better understand how to improve the lives of their patients.

Contributors:
International Consortium for Health Outcomes Measurement (ICHOM)

Further Study Information

Current Stage:
Ongoing
Date:
November 2018 - October 2019
Funding source(s):
NHS England; ACI; Providence; VGR

Health Area

Disease Category
Mental health

Disease Name
Anxiety
Depression
Obsessive-compulsive disorder (OCD)

Target Population

Age Range
-

Sex
Either


Nature / type of Intervention
Unknown

Method(s)

Consensus meeting
Delphi process
Focus group(s)
Literature review
Semi structured discussion
Survey

ICHOM facilitates and organises monthly teleconference meetings with the Working Group members to develop the Standard Set in a structured way. This process involves the following steps:

• Defining how we classify the population of patients
• Compiling a list of outcome measures in use by national or regional outcome measurement efforts (including national audits) as well as those in use by leading programs and validated patient-reported outcomes that have been reported in the medical literature
• Defining a prioritised list of outcomes that assess success in managing these conditions from the patient’s perspective
• Agreeing on the best available instrument or definition to measure each domain
• Defining necessary baseline case-mix adjustment variables in order to make comparisons possible
• Developing a reference guide that describes instruments that should be used, and that provides users with the necessary background information to adopt the Standard Set
• Publishing the complete Standard Set of outcomes in a leading journal and present at conferences
• Making the Standard Set accessible and freely available to all


Stakeholders Involved

Charities
Clinical experts
Consumers (caregivers)
Consumers (patients)
Epidemiologists
Families
Patient/ support group representatives
Researchers
Service providers
Statisticians

Study Type

COS for practice

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