Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well-being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.
Catherine L. Auriemma, Jasleen Minhas, Randi Blue, Tess Lapatra, Steven M. Kawut, Katherine R. Courtright
Disease Category: Heart & circulation
Disease Name: Pulmonary arterial hypertension (PAH)
Age Range: Unknown
Nature of Intervention:
- Patient perspectives