“It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment

Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well-being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.


Catherine L. Auriemma, Jasleen Minhas, Randi Blue, Tess Lapatra, Steven M. Kawut, Katherine R. Courtright


Journal: Pulmonary Circulation
Volume: 13
Issue: 2
Pages: -
Year: 2023
DOI: 10.1002/pul2.12236

Further Study Information

Current Stage: Completed
Funding source(s):

Health Area

Disease Category: Heart & circulation

Disease Name: Pulmonary arterial hypertension (PAH)

Target Population

Age Range: Unknown

Sex: Either

Nature of Intervention:

Stakeholders Involved

Study Type

- Patient perspectives


- Interview

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