A core outcome set in subarachnoid haemorrhage research

A core outcome set in subarachnoid research is both necessary and attainable. Our systematic review demonstrated substantial heterogeneity in the outcome measures employed in subarachnoid haemorrhage research. The development of a specific core outcome set will engage relevant stakeholders including patients, families, researchers, clinicians, allied health workers and policy-makers and identify which outcome measures should be prioritized during research. This specific core outcome set will aim to achieve consensus on how and when to measure these outcomes.

Contributors

Shane W English (Clinician, Researcher, Project Lead - Canada)
Christopher R Andersen (Clinician, Researcher, Project Lead - Australia/UK)
Maria Luisa Marti (Patient Research Partner)
Philip Talbot (Patient Research Partner)
Victoria Saigle (Coordinator, Researcher)
Justin Presseau (Social Scientist, Researcher)
Anthony Delaney (Clinician, Researcher)
Simon Finfer (Clinician, Researcher)

Further Study Information

Current Stage: Ongoing
Date: 2016 - 2020
Funding source(s): None


Health Area

Disease Category: Neurology

Disease Name: Aneurysmal Subarachnoid Haemorrhage

Target Population

Age Range: 18 - 100

Sex: Either

Nature of Intervention: Any

Stakeholders Involved

- Clinical experts
- Conference participants
- Families
- Patient/ support group representatives
- Researchers
- Service commissioners

Study Type

- COS for clinical trials or clinical research

Method(s)

- Consensus meeting
- Delphi process
- Focus group(s)
- Literature review
- Other
- Systematic review

Initial scoping review (published) followed by Q-sort method for stakeholder attitudes, Delphi process +/- Consensus meeting for final COS.

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