Links
Here you can find links to useful and relevant websites. If there is a link that you would like to recommend for this list, please contact us.
Relevant web links
- Standards for Research in Child Health (StaR Child Health)
- Outcome Reporting Bias in Trials (ORBIT)
- The Cochrane Collaboration
- Medical Research Council (MRC)
- National Institute for Health Research (NIHR)
- MRC Network of Hubs for Trials Methodology Research
- Cochrane Collaboration’s Methods Group for PROM
- Cochrane Journal Club
- Enhancing the QUAlity and Transparency Of health Research (EQUATOR)
- Consolidated Standards of Reporting Trials (CONSORT)
- 2010 International Clinical Trials Day podcast
- CARE - Program for Integrative Health & Healing
- The IDEAL Collaboration
Core outcome networks / groups / collaborations
- Outcome Measures in Rheumatology (OMERACT)
- Harmonizing Outcome Measures for Eczema (HOME)
- Initiative on Methods, Measurement, and Pain Assessment in Clinical Trials (IMMPACT)
- Women and Babies Health and Wellbeing : Action through Trials (WOMBAT)
- Prevention of Falls Network (PROFANE)
- European Wound Management Association Patient Outcome Group (EWMA)
- Acute Dialysis Quality Initiative (ADQI)
- European Society of Cutaneous Lupus Erythematosus (EUSCLE)
- International Myositis Assessment and Clinical Studies Group (IMACS)
- Pediatric Rheumatology International Trials Organization (PRINTO)
Patient involvement
How to measure
- Patient Reported Outcomes Measurement Information System (PROMIS)
- Patient Reported Outcome and Quality of Life Instruments Database (PROQOLID)
- Consensus based standards for the selection of health measurement instruments (COSMIN)
- TREAT NMD
- Database of Instruments for Resource Use Measurement (DIRUM)
