Core Outcome Measures in Effectiveness Trials

Public involvement

PoPPIE Working Group member biographies

Members of the COMET People and Patient Participation, Involvement and Engagement (PoPPIE) working group are introduced in this resource.

To download this document click here.

 

 

PoPPIE Working Group – Terms of Reference

The remit of the COMET People and Patient Participation, Involvement and Engagement (PoPPIE) working group is presented in this resource.

To download this document click here.

 

 

Evaluating participant experience of consensus meetings

This provides an example of an evaluation form developed by a core outcome set team to evaluate participant experience of a consensus meeting.

To download this document click here.

 

 

Involving People document

In March 2014 COMET hosted a collaborative meeting between core outcome set developers , UK public involvement organisations and the COMET Initiative.

The report of this ‘COMET – Involving People’ meeting is available here.

 

 

COMET Public Involvement strategy

The COMET Initiative have developed a Public Involvement strategy outlining our public involvement objectives and initial plans for public involvement activities. This report is available here.

 

EURORDIS webinar

This video explains: what core outcome sets are; why they are important; how patients are getting involved in their development and the role of the COMET Initiative.

 

Patient and Public involvement in a core outcome set (The MOMENT study)

This video explains the involvement and participation of parents, young people and a patient organisation in a core outcome set study.

 

Making information accessible for patients and the public

This document provides information on writing in plain English, readability and presentation of information to help you make your information accessible for patients and the public.

 

The Patient and Public Involvement checklist for COS developers

This resource is designed to help researchers and public research partners working together in designing a COS study with patients as participants

You can download this document here

 

End of study information

An example of end of COS study information for participants (designed with patient involvement) is available here

 

Social media guidance

Guidance has been developed in the UK by INVOLVE* and a link to this guidance is here

*INVOLVE was established in 1996 in England and is part of, and funded by, the National Institute for Health Research, to support active public involvement in NHS, public health and social care research

 

Including patients in core outcome set development: issues to consider based on three workshops with around 100 international delegates

This article describes three workshops that explored how patients can contribute to decisions about what outcomes are measured in clinical trials.

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