Sickle Cell Disease
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The below search results are separated into core outcome set studies and other relevant studies. Core outcome set studies are ordered by the date added to the database. Other relevant studies are ordered by study type using the COMET study type classification hierarchy which can be viewed here. Studies can be displayed using a different sort order by downloading the search results using the link below.
Papers that are all part of one study are represented by one colour block, with linked studies displayed underneath the main paper in a smaller font size.
Your search returned 4 results for 3 Core Outcome Set studies.
Your search returned 2 results for other studies. To see those other studies click here.
| Disease Name | Study Title | Year | Study Type | Disease Category | Authors | |
|---|---|---|---|---|---|---|
|
- Acute lymphoblastic leukemia - Chronic lymphocytic leukaemia - Haemophilia/hemophilia and other bleeding disorders - Hodgkin’s disease and lymphoma - Leukemia - Leukemia (acute myeloid) - Myelodysplastic syndromes (MDS) - Myeloma (also known as Multiple myeloma) - Non-Hodgkin's lymphoma (NHL) - Sickle Cell Disease |
Development of a core outcome set for dose optimization in adults with hematological diseases | Ongoing |
- COS for clinical trials or clinical research - COS for practice |
- Blood disorders | Cæcilie Borregaard Myrhøj, Astrid Toft Christiansen, Anne Ortved Gang, Troels Hammer, Anne Møller Clausen, Charlotte Nørregaard Grønset, Lea Brandt Kr... | |
| - Sickle Cell Disease | Core Outcome Set for Sickle Cell Disease in Pregnancy | Ongoing | - COS for clinical trials or clinical research |
- Pregnancy & childbirth - Blood disorders |
Principal Investigator: Dr. Ann Kinga Malinowski Assistant Professor, University of Toronto Clinical Investigator, Lunenfeld-Tanenbaum Research Ins... | |
| - Sickle Cell Disease | Systematic review of outcome reporting in studies of SCD and pregnancy: marked heterogeneity hinders meaningful data synthesis | 2023 | - Systematic review of outcomes measured in trials |
- Blood disorders - Pregnancy & childbirth |
Eran Ashwal, Nadine Shehata, Kevin H. M. Kuo, Michelle Jiyon Ryu, Richard Ward, and Ann Kinga Malinowski | |
| - Sickle Cell Disease | coreSCD: multi-stakeholder consensus on core outcomes for sickle cell disease clinical trials | 2021 | - COS for clinical trials or clinical research | - Blood disorders | Ellen Tambor , Matoya Robinson, Lewis Hsu, Hsing-Yuan Chang and Jennifer Al Naber on behalf of the coreSCD Panel |
Your search returned: 2 results
| Disease Name | Study Title | Year | Study Type | Disease Category | Authors | |
|---|---|---|---|---|---|---|
| - Sickle Cell Disease | Clinical trial considerations in sickle cell disease: patient-reported outcomes, data elements, and the stakeholder engagement framework | 2021 | - Overview of literature | - Blood disorders | Sherif M. Badawy | |
| - Sickle Cell Disease | The Voice of the Patient: Sickle Cell Report | 2014 | - Patient perspectives | - Genetic disorders | U.S. Food and Drug Administration (FDA) |