Objectives This qualitative study aimed to investigate: (1) priorities of patients and healthcare professionals during recovery from a burn injury, (2) how priorities change over time and (3) how priorities map to outcomes currently reported in burns research.
Design Semi-structured interviews were conducted. Interviews were audio recorded, transcribed and analysed thematically.
Setting, participants A total of 53 patients and healthcare professionals were recruited from four National Health Service (NHS) burn services across England and Wales across England and Wales. Patient participants (n=32) included adults, adolescents and parents of paediatric patients, with a variety of burn injuries in terms of severity and cause of burn injury. Healthcare professionals (n=21) were NHS staff members involved in burn care and included professionals with a range of clinical experience and roles (eg, nurses, surgeons, occupational therapists, physiotherapist, administration).
Results Ten themes relating to priorities (outcomes) during recovery from a burn injury were identified for patients and professionals. Of those, six were identified for patients and professionals (‘pain and discomfort’, ‘psychological well-being’, ‘healing’, ‘scarring’, ‘function’, ‘infection’), three were unique to professionals (‘patient knowledge, understanding and support’, ‘sense of control’, ’survival’) and one was unique to patients (‘uncertainty’). Results highlighted that importance of these priorities changes over time (eg, ‘survival’ was only a concern in the short term). Likewise, priorities differed between patients and professionals (eg, ‘pain’ was important to patients throughout their recovery, but not for professionals). Seven out of 10 themes overlapped with outcomes commonly assessed in burn research.
Conclusion Professionals’ and patients’ priorities (important outcomes) change over time after burn injury and differ between those groups. Burn care research should consider measuring outcomes at different time points during the recovery from a burn injury to accurately reflect complexity of burn recovery.
This qualitative study had three objectives:
1. Investigate priorities of burns patients (including
adults, adolescents and parents of paediatric patients)
and healthcare professionals during burn recovery
and explore how they differ.
2. Explore how priorities of patients and healthcare professionals change over time.
3. Map identified themes to outcomes currently reported
in burns research.
Christin Hoffmann, Philippa Davies, Daisy Elliott, Amber Young
Disease Category: Orthopaedics & trauma
Disease Name: Burns
Age Range: Unknown
Sex: Either
Nature of Intervention:
- Clinical experts
- Consumers (patients)
- Families
- Researchers
- Patient perspectives
- Interview
- Semi structured discussion
This study uses qualitative methods, employing in-depth,
semi-structured interviews to explore participants’
perspectives over time.