Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa

No abstract


Eva W H Korte, Anna M G Pasmooij, Maria C Bolling, Sinéad Hickey, Sagair Hussain, Dimitra Kiritsi, Jan Kottner, Cecilia A C Prinsen, Angélique Sauvestre, Gaston Sendin, Phyllis I Spuls, Núria Tarrats, Verena Wally, Tobias Welponer, Martin Laimer, Peter C van den Akker, the COSEB Consortium


Journal: British Journal of Dermatology
Pages: -
Year: 2024
DOI: 10.1093/bjd/ljae200

Further Study Information

Current Stage: Completed
Funding source(s): The workshop was funded by the Networking Support Scheme of the European Joint Programme on Rare Diseases and ZonMw (40-46300-98-1122).

Health Area

Disease Category: Genetic disorders, Skin

Disease Name: Epidermolysis bullosa

Target Population

Age Range: 0 - 100

Sex: Either

Nature of Intervention: Any

Stakeholders Involved

Study Type

- Commentary