Aim
To identify outcomes reported after selective dorsal rhizotomy (SDR) in ambulant children and young people with cerebral palsy in different domains of the International Classification of Functioning, Disability and Health (ICF).
Method
A scoping review using the JBI Scoping Review methodology was conducted. Six databases were searched for literature published between 1993 and 2024.
Results
A total of 214 published papers met the inclusion criteria. Outcomes under the body function and structure domain were most frequently investigated (n=199, 93%), followed by activity (n=123, 58%) and participation (n=33, 15%) across all studies. Quality of life was reported in 16 (8%) studies, and four (2%) studies mentioned individualized goals for SDR surgery. A combination of validated measures and subjective outcomes was used, with 119 (56%) studies reporting outcomes in two or more domains.
Interpretation
Impairment-based outcomes remain the primary focus in SDR research. A small shift in emphasis towards participant-reported outcome measures has been seen in recent years. Few studies reported on the impact of personal and environmental factors. Future SDR studies need to incorporate all domains of the ICF to enhance understanding and capture holistic, meaningful changes in the lives of children and young people with cerebral palsy and their families.
Deepti Chugh, Eleanor Main, Gillian Waite, Lucy Alderson, Kristian Aquilina, Cherry Kilbride, Tim Theologis, Hortensia Gimeno
Disease Category: Child health, Neurology
Disease Name: Cerebral palsy
Age Range: 0 - 18
Sex: Either
Nature of Intervention: Surgery
- Systematic review of outcomes measured in trials
- Systematic review
- Use of the International Classification of Functioning, Disability and Health (ICF)
Outcomes were mapped into different domains of ICF body structure and function, activity, participation, and contextual factors on the basis of the ICF definitions.10 Quality-of-life outcomes, which encompass all components of the ICF, patient experience, individual goals, and patient satisfaction, were categorized separately.