Validating the standardised outcomes in nephrology-life participation (SONG-LP) measure in people receiving peritoneal dialysis: Rationale and process

Life participation has been identified as a critically important core outcome to be reported in all trials in people receiving peritoneal dialysis (PD). Life participation is defined as the ability to participate in meaningful activities such as work (e.g. employment, housework, study), family, social (e.g. time with friends) and leisure (travel, hobbies, exercise) activities. However, life participation is rarely and inconsistently reported in trials in PD. The standardised outcomes in nephrology-life participation (SONG-LP) instrument was validated in adult kidney transplant recipients and demonstrated internal consistency and test-retest reliability. In this article, we outline the rationale and process for validating the SONG-LP instrument in people receiving PD.

Contributors

Cameron Thomas Burnett, Allison Jaure, Anastasia Hughes, Angela Ju, Martin Howell Karine Manera, Melissa Cheetham, David Wayne Johnson, Martin Wilkie, Fiona Loud, Ana Figueiredo, Catherine Cheung, Daniel Schwartz, Helen Hurst, Janine Farragher, Jenny Shen, Rachael L Morton, Rachael C Walker, Rajnish Mehrotra, Thyago Moraes, Sarbjit Vanita Jassal, Yeoungjee Cho

Publication

Journal: Peritoneal Dialysis International (PDI)
Volume:
Issue:
Pages: -
Year: 2025
DOI: https://doi.org/10.1177/08968608251376478

Further Study Information

Current Stage: Completed
Date:
Funding source(s): The authors disclosed receipt of the following financial support for the research, authorship and/or publication of this article: YC (APP2009309), RLM (APP1194703) and KM (APP2008774) are recipients of the Australian National Health and Medical Research Council (NHMRC) Emerging Leadership Investigator Grant. AJ (APP1106716) and DWJ (APP1194485) are recipients of NHMRC Leadership Investigator Grants. MC and YC are current recipients of a Queensland Advancing Clinical Research Fellowship.

---

Method(s)

Linked Studies

• Establishing a Core Outcome Set for Peritoneal Dialysis: Report of the SONG-PD (Standardized Outcomes in Nephrology–Peritoneal Dialysis) Consensus Workshop
• An international Delphi survey helped develop consensus-based core outcome domains for trials in peritoneal dialysis
• Establishing a Core Outcome Measure for Peritoneal Dialysis-related Peritonitis: A Standardized Outcomes in Nephrology-Peritoneal Dialysis Consensus Workshop Report
• Establishing a core outcome measure for life participation in patients receiving peritoneal dialysis: A Standardised Outcomes in Nephrology–Peritoneal Dialysis consensus workshop report

Related Links

No related links