Epilepsy
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The below search results are separated into core outcome set studies and other relevant studies. Core outcome set studies are ordered by the date added to the database. Other relevant studies are ordered by study type using the COMET study type classification hierarchy which can be viewed here. Studies can be displayed using a different sort order by downloading the search results using the link below.
Papers that are all part of one study are represented by one colour block, with linked studies displayed underneath the main paper in a smaller font size.
Your search returned 24 results for 15 Core Outcome Set studies.
Your search returned 9 results for other studies. To see those other studies click here.
| Disease Name | Study Title | Year | Study Type | Disease Category | Authors | |
|---|---|---|---|---|---|---|
|
- Anxiety - Depression - Epilepsy |
Development of a consensus-based core outcome set for post-treatment recovery in adults with epilepsy and comorbid depression or anxiety | Ongoing |
- COS for clinical trials or clinical research - COS for practice |
- Mental health - Neurology |
Yan Wang, Zaibang Feng, Zhiyue Guo, Hongxia Xing, Zhaohong Guo, Xinli Zhao, Zubing Mei | |
| - Epilepsy | Core Outcome Set for Neuromodulation in Drug-Resistant Epilepsy | Ongoing |
- COS for clinical trials or clinical research - COS for practice |
- Neurology | Vikram R. Rao, Kathryn A. Davis, John Rolston, Chloe Hill, Erin C. Conrad, Daniel Friedman, Dario J. Englot, Robert Moss, Arthur Cukiert, Elisabeth Ka... | |
| - Epilepsy | What matters most to people living with epilepsy? A rapid review of qualitative research relating to health outcomes | 2025 | - Systematic review of qualitative research | - Neurology | James W. Mitchell, John Doherty, Rachel Batchelor, Adam Noble, Anthony Marson | |
| - Epilepsy | Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations | 2024 | - COS for practice | - Neurology | James W. Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Luz Sousa Fialho, Action Amos, Joan K. Austin, Scott Badzik, G... | |
| - Epilepsy | Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations | 2024 | - COS for practice | - Neurology | James W. Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Luz Sousa Fialho, Action Amos, Joan K. Austin, Scott Badzik, G... | |
| - Epilepsy | Core Outcomes in Refractory childhood Epilepsy treated with Ketogenic Diet Therapy (CORE-KDT) study | 2023 |
- COS for clinical trials or clinical research - COS for practice |
- Child health - Neurology |
Jennifer Carroll (principal investigator), Lecturer in Dietetics, School of Health Professions, Faculty of Health and Human Sciences, University of Pl... | |
| - Epilepsy | Core outcome set development for childhood epilepsy treated with ketogenic diet therapy: Results of a scoping review and parent interviews | 2022 |
- Patient perspectives - Systematic review of outcomes measured in trials |
- Neurology | Jennifer H. Carroll, Kirsty J. Martin-McGill, J. Helen Cross, Mary Hickson, Emma Williams, Val Aldridge, Avril Collinson | |
| - Epilepsy | Protocol for the development of an international Core Outcome Set for treatment trials in adults with epilepsy: the EPilepsy outcome Set for Efectiveness Trials Project (EPSET) | 2022 |
- COS for clinical trials or clinical research - Recommendations for outcome measures (measurement/how) |
- Neurology | James W. Mitchell, Adam Noble, Gus Baker, Rachel Batchelor, Francesco Brigo, Jakob Christensen, Jacqueline French, Antonio Gil-Nagel, Alla Guekht, Nat... | |
| - Epilepsy | Development of a Core Outcome Set for use in randomised controlled trials in adult epilepsy. | Ongoing |
- COS for clinical trials or clinical research - Recommendations for outcome measures (measurement/how) |
- Neurology | Dr James Mitchell, The Walton Centre NHS FT, Liverpool, UK. Professor Tony Marson, Institute of Translational Medicine, University of Liverpool, UK... | |
| - Epilepsy | Epilepsy core outcome set for effectiveness trials (EPSET): A systematic review of outcomes measured in registered phase III and IV clinical trials for adults with epilepsy | 2025 | - Systematic review of outcomes measured in trials | - Neurology | James W. Mitchell, Rachel Batchelor, Guleed Adan, Adam Noble, Paula R. Williamson, Tony Marson | |
| - Epilepsy | Development of a core outcome set for measuring quality of life in clinical practice in adult epilepsy | 2022 |
- COS for practice - COS Patient Reported Outcomes |
- Neurology | Sharon Chiang (principal investigator), University of California, San Francisco, USA Robert Moss (principal investigator), Seizure Tracker, LLC, USA ... | |
| - Epilepsy | Unique quality of life priorities for people with epilepsy and comorbid functional seizures | 2026 | - Patient perspectives | - Neurology | Kathleen L. Cui, Robert Moss, Vikram R. Rao, Sharon Chiang | |
| - Epilepsy | Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system | 2021 |
- COS for clinical trials or clinical research - COS for practice |
- Neurology | Z. M. Grinspan, A. D. Patel, R. A. Shellhaas, A. T. Berg, E. T. Axeen, J. Bolton, D. F. Clarke, J. Coryell, W. D. Gaillard, H. P. Goodkin, S. Koh, A. ... | |
| - Epilepsy | European Expert Opinion on ANT-DBS therapy for patients with drug-resistant epilepsy (a Delphi consensus) | 2020 | - COS for practice | - Neurology | Kaufmann, E., F. Bartolomei, P. Boon, S. Chabardes, A. J. Colon, L. Eross, D. Fabo, A. Goncalves-Ferreira, L. L. Imbach, W. Van Paesschen, J. Peltola,... | |
| - Epilepsy | Core Health Outcomes in Childhood Epilepsy (CHOICE): Development of a core outcome set using systematic review methods and a Delphi survey consensus. | 2019 | - COS for clinical trials or clinical research | - Neurology | Crudgington H1, Rogers M2, Bray L3, Carter B3, Currier J4, Dunkley C5, Gibbon FM6, Hughes D7, Lyle S1, Roberts D4, Tudur Smith C8, Gringras P1,9, Pal ... | |
| - Epilepsy | Mapping epilepsy-specific patient-reported outcome measures for children to a proposed core outcome set for childhood epilepsy | 2020 | - Systematic review of outcome measures/measurement instruments | - Neurology | Holly Crudgington, Amber Collingwood, Lucy Bray, Samantha Lyle, Rachael Martin, Paul Gringras, Deb K. Pal, Christopher Morris | |
| - Epilepsy | Development of outcome criteria to measure effectiveness of antiepileptic therapy in children | 2018 | - COS for clinical trials or clinical research | - Neurology | Murugupillai, Roshini Ranganathan, Shalini Sri Wanigasinghe, Jithangi Muniyandi, Ravi Arambepola, Carukshi | |
| - Epilepsy | Neuropsychological outcomes following paediatric temporal lobe surgery for epilepsies: Evidence from a systematic review | 2017 | - COS for clinical trials or clinical research | - Neurology | Flint, A. E. Waterman, M. Bowmer, G. Vadlamani, G. Chumas, P. Morrall, Mchj | |
| - Epilepsy | Which outcomes should we measure in adult epilepsy trials? The views of people with epilepsy and informal carers | 2016 | - COS for clinical trials or clinical research | - Neurology | Noble, A. J. Marson, A. G. | |
|
- Epilepsy in pregnancy - Epilepsy |
Development of a core outcome set for epilepsy in pregnancy (E-CORE): a national multi-stakeholder modified Delphi consensus study | 2016 | - COS for clinical trials or clinical research | - Pregnancy & childbirth | BH Al Wattar, K Tamilselvan, R Khan, A Kelso, A SInha, AM Pirie, D McCOrry, KS Khan, S Thangaratinam | |
|
- Epilepsy - Epilepsy in pregnancy |
Variation in the reporting of outcomes among pregnant women with epilepsy: a systematic review | 2015 | - Systematic review of outcomes measured in trials | - Pregnancy & childbirth | Al Wattar, B. H. Placzek, A. Troko, J. Pirie, A. M. Khan, K. S. McCorry, D. Zamora, J. Thangaratinam, S. Empire Collaborative Network | |
|
- Epilepsy - Infantile spasms - West syndrome |
A proposal for case definitions and outcome measures in studies of infantile spasms and West syndrome: consensus statement of the West Delphi group | 2004 | - COS for clinical trials or clinical research |
- Neurology - Child health |
Lux, Andrew L. Osborne, John P. | |
|
- Epilepsy - Infantile spasms - West syndrome |
Towards an international consensus on definitions and standardised outcome measures for therapeutic trials (and epidemiological studies) in West syndrome | 2001 |
- Overview of literature - COS for clinical trials or clinical research |
- Neurology - Child health |
Osborne, J. P. Lux, A. | |
| - Epilepsy | Considerations on designing clinical trials to evaluate the place of new antiepileptic drugs in the treatment of newly diagnosed and chronic patients with epilepsy | 1998 | - COS for clinical trials or clinical research | - Neurology | Report of the ILAE Commission on Antiepileptic Drugs |
Your search returned: 9 results
| Disease Name | Study Title | Year | Study Type | Disease Category | Authors | |
|---|---|---|---|---|---|---|
|
- Epilepsy - Epilepsy in pregnancy |
Developing a preconception care pathway for women with epilepsy in the UK: identifying key interventions and patient-reported outcomes using a mixed methods Delphi approach | Ongoing |
- Patient perspectives - Prioritising |
- Pregnancy & childbirth | PI: Dr Janine Beverley Winterbottom (PhD) Advanced Nurse Specialist in Epilepsy The Walton Centre NHS Foundation Trust, Liverpool & University of Live... | |
| - Epilepsy | Health priorities and treatment preferences of adults with epilepsy: A narrative literature review with a systematic search | 2025 | - Patient perspectives | - Neurology | Chloé E. Hill, Kathryn Vanderboll, Jack M. Parent, Lesli E. Skolarus, Darin B. Zahuranec | |
| - Epilepsy | A cross-sectional survey of healthcare professionals supporting children and young people with epilepsy and their parents/carers: which topics are raised in clinical consultations and can healthcare professionals provide the support needed? | 2023 | - Recommendations made | - Neurology | Georgia Cook, Lucy Bray, Bernie Carter, Paul Gringras, Christopher Morris, Deb K Pal, Holly Saron, Catrin Tudur Smith, Luci Wiggs | |
| - Epilepsy | Clinician views regarding early surgery for paediatric epilepsy | 2023 | - Recommendations made | - Neurology | Omar Salim, Aswin Chari, Ido Ben Zvi, Rachel Batchelor, Torsten Baldeweg, J. Helen Cross, Martin Tisdall | |
| - Epilepsy | The adaptation of the desirability of outcome ranking for interventional clinical trials in epilepsy: A novel consumer-led outcome measure | 2023 | - Patient perspectives | - Neurology | Lucy Vivash, Hannah Johns, Terence J O'Brien, Leonid Churilov | |
| - Epilepsy | 'No one's ever said anything about sleep': A qualitative investigation into mothers' experiences of sleep in children with epilepsy | 2023 | - Patient perspectives | - Neurology | Georgia Cook, Paul Gringras, Harriet Hiscock, Deb K Pal, Luci Wiggs | |
| - Epilepsy | The experiences of adolescents and young adults with epilepsy: A systematic review and meta-synthesis of qualitative studies | 2023 | - Systematic review of qualitative research | - Neurology | Nan Bai, Min Yin, Huiyue Zhang, Zheng Li | |
| - Epilepsy | Common data elements in epilepsy research: development and implementation of the NINDS epilepsy CDE project | 2011 | - Recommendations for outcome measures (measurement/how) | - Neurology | Loring, D. W. Lowenstein, D. H. Barbaro, N. M. Fureman, B. E. Odenkirchen, J. Jacobs, M. P. Austin, J. K. Dlugos, D. J. French, J. A. Gaillard, W. D. ... | |
| - Epilepsy | ILAE Commission Report. Proposal for a new classification of outcome with respect to epileptic seizures following epilepsy surgery | 2001 | - Recommendations made | - Neurology | Wieser, H. G. Blume, W. T. Fish, D. Goldensohn, E. Hufnagel, A. King, D. Sperling, M. R. Luders, H. Pedley, T. A. Commission on Neurosurgery of the In... |