COMET Initiative | Report of the second Outcome Measures in Myotonic Dystrophy type 1 (OMMYD-2) international workshop San Sebastian, Spain, October 16, 2013

Report of the second Outcome Measures in Myotonic Dystrophy type 1 (OMMYD-2) international workshop San Sebastian, Spain, October 16, 2013

Contributors

Gagnon, C. Meola, G. Hebert, L. J. Laberge, L. Leone, M. Heatwole, C.

Publication

Journal: Neuromuscul Disord
Volume: 25
Issue: 7
Pages: 603 - 16
Year: 2015
DOI: 10.1016/j.nmd.2015.01.008

Further Study Information

Current Stage: Not Applicable
Date: October 2013
Funding source(s): Association Française contre les Myopathies (AFM) (MED2 2013) and the Marigold Foundation.

Health Area

Disease Category: Neurology

Disease Name: Myotonic dystrophy

Target Population

Age Range: Unknown

Sex: Either

Nature of Intervention:

Stakeholders Involved

- Clinical experts
- Researchers

Study Type

- Recommendations for outcome measures (measurement/how)

Method(s)

- Semi structured discussion

For this second workshop, a total of 46 attendees (clinicians and researchers working in myotonic dystrophy type 1 (DM1)) from France, Canada, USA, the UK, Germany, Sweden, England, Hungary, the Netherlands and Italy met in San Sebastian, Spain on October 16, 2013