Report of the third outcome measures in myotonic dystrophy type 1 (OMMYD-3) international workshop Paris, France, June 8, 2015

Contributors

Gagnon, C. Heatwole, C. Hebert, L. J. Hogrel, J. Y. Laberge, L. Leone, M. Meola, G. Richer, L. Sansone, V. Kierkegaard, M.

Publication

Journal: J Neuromuscul Dis
Volume: 5
Issue: 4
Pages: 523 - 537
Year: 2018
DOI: 10.3233/JND-180329

Further Study Information

Current Stage: Not Applicable
Date: June 2015
Funding source(s): Association fran¸caise contre les myopathies (AFM) and the Marigold Foundation


Health Area

Disease Category: Neurology

Disease Name: Myotonic dystrophy

Target Population

Age Range: Unknown

Sex: Either

Nature of Intervention:

Stakeholders Involved

- Clinical experts
- Researchers

Study Type

- Recommendations for outcome measures (measurement/how)

Method(s)

- Semi structured discussion